On August 10th 2017 I finally had a diagnosis for the disease that helped end my marraige. Doctor Cameran Coffee of The Vancouver Clinic took note of all the combined symptoms that I had been complaining about. He ran a simple blood test and his suspisions were confirmed. I have a genetic blood disorder called prophyria.
Acute porphyrias, which I have, primarily affect the nervous system. These disorders are described as “acute” because their signs and symptoms appear quickly and usually last a short time. Episodes of acute porphyria can cause abdominal pain, vomiting, constipation, and diarrhea. During an episode, a person may also experience muscle weakness, seizures, fever, and mental changes such as anxiety and hallucinations. These signs and symptoms can be life-threatening, especially if the muscles that control breathing become paralyzed. Acute porphyrias include acute intermittent porphyria and ALAD deficiency porphyria. Two other forms of porphyria, hereditary coproporphyria and variegate porphyria, can have both acute and cutaneous symptoms.
When it was out of control, my wife at the time was convinced by here family that I was making it up. Even thow she was there to clean up the mess. I was told by one doctor that a mass in my head was cancer and at the rate of growth, I had two years to live. This miss diagnosis became thought of as this horable lie among Kansa’s family and friends. But all the symtoms were there.
Two years passed and Kansa became convinced by here family that because I had lived the whole thing had to be a lie. Three years have passed and I am dealing with an incurable diease that would gladly take my life it I let it. I wake up vomiting blood and my right arm and leg goes numb without warning. I dropped our popcorn on one of Kristiea and My first dates because my arm went numb. But remember I am a liar.
It seems to me that thousands of dollars in medical bills could have been avoided and maybe I would still be married to Kansa, if the doctors and insurance companies didn’t scrach each other’s back.